“This is my first time seeing something I struggled with my whole life in a book. If it had been around when I was a kid, it would have made a world of difference. Feeling isolated and watching the other kids play was something I dealt with as a kid. Knowing that a kid could see this book and not feel alone, is amazing. The tears I cried about this book may seem small, but the representation means so much to me.”
Amanda B, EDS patient
Bendy Bones and Stretchy Skin:
An Ehlers-Danlos Book
By Pey Carter and Abigail Bailey
When Abigail is diagnosed with Ehlers-Danlos, at first, her classmates don’t understand.
Abigail doesn’t look like she has a disability. What is her special chair for? How do walk breaks help?
In this kids' book about disabilities, Abigail and her mom bring awareness to her invisible illness–and her friendships grow stronger because of it.
Where to Buy Signed Copies
Nathan Rudin, M.D., Physical Medicine and Rehabilitation, University of Wisconsin School of Medicine and Public Health.
“My patients have clamored for information that helps others understand the unique plight of a person with EDS. Help has arrived in the form of a wonderful picture book. With gentleness and humor, the creators capture both the loneliness of those with disabilities and the health-boosting effects of validation and shared experience.”