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EDS Book: Image

“This is my first time seeing something I struggled with my whole life in a book. If it had been around when I was a kid, it would have made a world of difference. Feeling isolated and watching the other kids play was something I dealt with as a kid. Knowing that a kid could see this book and not feel alone, is amazing. The tears I cried about this book may seem small, but the representation means so much to me.”

Amanda B, EDS patient

EDS Book: Quote

Bendy Bones and Stretchy Skin:
An Ehlers-Danlos Book

By Pey Carter and Abigail Bailey

When Abigail is diagnosed with Ehlers-Danlos, at first, her classmates don’t understand. 


Abigail doesn’t look like she has a disability. What is her special chair for? How do walk breaks help?


In this kids' book about disabilities, Abigail and her mom bring awareness to her invisible illness–and her friendships grow stronger because of it.

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EDS Book: Bio
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Nathan Rudin, M.D., Physical Medicine and Rehabilitation, University of Wisconsin School of Medicine and Public Health.

“My patients have clamored for information that helps others understand the unique plight of a person with EDS. Help has arrived in the form of a wonderful picture book. With gentleness and humor, the creators capture both the loneliness of those with disabilities and the health-boosting effects of validation and shared experience.”

EDS Book: Quote

Where to Buy Signed Copies

Support independent bookstores and local authors!

EDS Book: List

String Theory Studio

116 N Bridge St,
Chippewa Falls, WI 54729

Wisconsin Makers Market

106 E Grand Ave,
Eau Claire, WI 54701

Dotters Books

307 S Barstow St,
Eau Claire, WI 54701

Bound to Happen Books

1008 Main St,
Stevens Point, WI 54481

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